I apologize in advance for how long it has taken me to post since my last update. We have experienced an interesting September, to say the least. Reilly produced a very black stool and we spent 3 days at Children's to determine the cause. She was scoped again - which produced interesting results...her esophagus was absolutely beautiful (YAY!!!!) and the doctor believes that she bled in her lower small intestine (where the scope does not go), but the bleed clotted off by itself. So, needless to say, a rather curious experience indeed. She now examines her business and informs everyone that it is brown! YAY!!! The week before this episode, she ran a fever of 103 and I had to bring her to the ER to rule out infection. It is believed that she had some kind of virus, with no other symptoms.
Last week, after getting her 4 yr immunizations, she immediately ran fever and was averaging 102.5 or so, and the fever would not go below 100.8, for 7 days, with no other symptoms (3 dr visits in those 7 days). We were referred to an infectious disease doctor, who has indicated, along with her pediatrician and her GI doctor, that we need to see a hematologist for the issues with her spleen and because she may be anemic. It is their opinion that she had a reaction to the immunizations, because of her spleen being enlarged. That being said, we add someone else to our list!
There is some concern that she is "leaking" blood, as her h+h was lower (low for her normal) and blood in your digestive system can apparently cause an unexplained fever. We are trying to make it to her next clinic appointment on Oct. 11 without incident and she will have more bloodwork then.
We have been in contact with a surgeon and team in Chicago that specializes in treatment for EHPVT / portal hypertension in children, and hopefully we will have an appointment for an evaluation soon.
This is where we are now. Please, please continue to pray for healing and also for strength and understanding, maybe a little patience too! Thanks again for lifting us up!
