Tulane Transplant Visit

Today we went to meet with the Tulane Abdominal Transplant Team to discuss the next steps in Reilly's care.  This visit was very unsettling to both me and Rickie.  We met with the surgeon and found that her explanations of the procedures were in direct contradiction to information that we have received from the GI doctors at Children's and other information that we have found through our own research.  The doctor was very nice, but did not even have the correct results of Reilly's most recent scope and banding.  Not very comforting as a parent of a child who has an immediate need for a surgical remedy to a very serious situation.  As they have not ever performed this type of surgery before - especially on a child, Tulane will probably perform some of the pre-operative testing (angiogram), however, that will be the limit of their involvement.  We are going to discuss our options further with the GI doctors at Children's on Wednesday.