At her last clinic visit, Reilly's blood ammonia levels had significantly decreased. Needless to say, we were very excited about that. Then, our family participated in the Children's Hospital Telethon, which raised over $1.7 million for Children's Hospital New Orleans! It was definitely a neat experience and we hope to be a part of it again.
Today, Reilly had another scope and had two bands placed. She did have an active bleed (a very slow one, but definitely fresh blood) this time. She is spending tonight at Children's and we will go home in the morning if things progress as usual. She is sleeping hard right now, and snuggling her stuffed monkey, but appears to be doing just fine.
Thank you all for keeping us in your thoughts and prayers. I will update as things happen, and they seem to be slowing down a bit (thankfully), but we still have an interesting road ahead. She will have a MRV (venogram) within the next couple of weeks, and bloodwork and clinic visits and all that good stuff. SO, that's it for now!
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