We heard today from Dr. Superina at Chicago Children's Memorial Hospital and Reilly is scheduled for surgery on January 23, 2012. We will have to be in Chicago for pre-surgery testing on January 18. She will have a 5-7 day stay at the hospital (with no problems) and hopefully be discharged by January 30. She will then have follow-up visits on Feb 3 and Feb 17. SO, we will have to stay in Chicago until those appointments are completed. Her additional follow-up care will be here at Children's in New Orleans with Dr. Noel.
This is very exciting and very terrifying at the same time. We are now trying to work out logistics and how to manage this whole experience.
Reilly is holding up well, although we have lately been experiencing apparently every virus that is going around. She saw the hematologist and we are following up with her in December. We go back to have testing done with Dr. Begue in two weeks and she will have EGD #10 on Monday. I will update as soon as possible.
Thanks so much for all of the prayers and thoughts throughout this time. Please continue to keep Reilly and our family lifted up, it works! :D
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