Status Update

Reilly was released from Children's on Tuesday, Jan. 10 and has been doing fairly well since.  She is currently VERY congested as a cold has made its rounds through our house, and seems to be the culprit.  Other than that, things have been quiet and subdued. 

As many of you know, Reilly's Aunt Holly passed away on January 8, 2012 due to complications from Cystic Fibrosis.  We have had a lot on our plates with this profound loss and with the Polka Dots & Pigtails Benefit all at the same time.  The benefit was a HUGE success and we extend our deepest gratitude and sincere thanks to all who donated - prizes, gift cards, money, time, and anything else - in helping to meet our goal and exceeding our expectations. 

There has been a set back in the situation with Reilly's surgery with the insurance and the fee schedule and negotiations for payment.  I guess it is all about the money now.  Unless and until an agreement is reached, her surgery will be postponed.  I have spent countless hours on the phone with Louisiana Medicaid and Children's Memorial Hospital and Dr. Noel trying to figure this out.  The communication breakdown has been resolved, but that still doesn't fix our problem.  I am examining other avenues and waiting (rather impatiently) for something to happen.   

Please pray this situation resolves quickly and continue to lift Reilly and our family up in prayer.