1,865 miles, 3 weeks and 5 days ...we are HOME! We made it back to Louisiana on Saturday and got to enjoy Easter at home. Reilly was very excited about getting to sleep in her own bed and using her own potty! To me, it's amazing the things I really missed from home. Sitting outside, being hot, smelling fresh cut grass, seeing lots of trees, my dogs, MY BED and MY BATHTUB!
Reilly is doing very well. She tires easily, but that is to be expected. We have her follow up appointments with her doctors here scheduled and Reilly and I will return to Chicago for an appointment on April 27. After that, she will do her 3 month and 9 month follow up here and return to Chicago for 6 month and 1 year.
She will remain on Coumadin until further notice and have all the bloodwork required to maintain her clotting levels appropriately. All of the steri-stips are off of the incision and she could not be happier or more excited about that. The problem now is keeping her low-key and making sure that she doesn't do anything to disturb the healing process. She is ready to climb and jump and swim, especially.
In the car today, headed to the grocery store, she said, "I am so, so really glad to be home, doing normal stuff." Gotta love that girl!
Cole made a welcome home poster for Reilly that was on the door when we drove up to the house and that made coming home that much sweeter. I am very happy to be home and trying to not be overwhelmed with the follow-up and monitoring that Reilly still has to be done. Be sure though, there is a definite sense of relief right now.
That little girl of yours is truly a miracle and an inspiration to us all. You two as parents are a blessing and God only gives special children to those He knows will do their best.
ReplyDeleteMy prayers will continue for Reilly and your whole family. God bless you one and all.
Emma