Sorry it has taken so long to post, we have had an eventful couple of weeks in our family. On Tuesday of last week, Reilly started running fever. My thoughts were, hey - we are leaving for Chicago on Wednesday and going to a hospital, we should be fine. Well, Wednesday, she started with the congestion and LOTS of snot. We made it to Chicago, beautiful weather, and NO humidity. Her ultrasound looked amazing, shunt is patent and working properly. There is no buildup on the walls of the synthetic material. Her spleen is a perfectly normal size (whooohooo), her gallbladder wall has thinned to normal (it was very thick prior to surgery), her liver has reduced in size (still a little large, but very manageable), and all other organs seem to be in proper working order.
As a treat, we went to eat at RainForest Cafe. Somewhere between parking with the valet and walking into the restaurant, or sometime while we were in the restaurant, someone stole my wallet. Yes, I know, NIGHTMARE. Money, bank card, credit card, ID, insurance cards, everything. So, after an enormous freak-out session, a long walk, and frantic calls to get my hands on funds (to pay the bill at the restaurant and get the car out of the parking lot), we made it back to the hotel for the night. I spent much of the rest of that evening on the phone cancelling cards and speaking with the police, trying to figure out how I was going to get on a plane to get home the next day.
Friday morning we saw Dr. Superina. The hospital has moved to a brand new, state of the art facility, and I must say that the view from the exam room was absolutely breathtaking. We had a great view of Lake Michigan on a beautiful summer day. Dr. Superina is very satisfied with Reilly's progress so far. She was not happy with the fact that he was dressed in jeans and a shirt and she asked him, "Where's your doctor clothes?" He told her he thought he would be casual today, to which she replied, "Not even your coat?" (with her hand on her hip, I'm sure you can imagine the scene). She WAS happy that he said she can do what she seems to be able to handle, making sure to watch any blows to her head and significant blows to her abdomen. REALLY GREAT NEWS!
So, we make it on the plane, with WAY less hassle than I thought we would have (a huge thank you to Officer Bracken of the Chicago Police Dept. for his help with the report and for faxing it to my hotel). We get home and Reilly seems to be getting worse, she's very congested and now has no voice and is coughing a lot.
On Monday, I started a new job. Go me! Reilly had to go to see the pediatrician because she was not sounding good at all. Because of the fever, she was tested for the flu, and sure enough, Type B. Lovely.
As of today, she is feeling much better and she sounds much better. She still has a little bit of a really nasty sounding cough, but it is loose and moving. No fever since about Saturday, so the pediatrician thinks we are in the clear. GIANT SIGH OF RELIEF. We were concerned about a secondary infection and/or pneumonia, but hopefully that has been avoided.
We made it through the week, we all survived, and seem to be on the right track. She will follow up with Dr. Noel in a couple weeks and then back to Chicago in September. She will have a CT scan then and pending what everything looks like at that point, she may be taken off of Coumadin and put on a different clotting medication that does not require constant monitoring (with blood work, etc.). So far, looking good! YAY!!!!
Please continue to keep Reilly in your thoughts and prayers.
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